Long Day at Children's

Well, yesterday was an exhausting day at Children's Hospital, but luckily, W was very pleasant even though he missed out on his normal naps. We had to two appointments in one day and we stopped along the interstate on our way back home to meet his nutritionist for some free samples of nutritional supplements. 


First, at 9:30am, W needed to complete a hearing test. This was a very interesting ordeal since babies cannot talk to say when they hear a sound. They first had to "trick" Wade to turn his head when a sound went off by lighting up a box with a moving toy in it. Our smart cookie kept anticipating the box to light up and he looked over at the boxes without a sound going off. Needless to say, his test results showed a lot of "false positives". Anyway, W can hear, but he could definitely hear better if fluid wasn't in his ears all the time.


After the hearing test, we saw the ENT doctor. This visit was seriously the most "to-the-point" visit I've ever encountered with W. She came in and said, "Well, I see that Wade has had several ear infections lately. Can I take a look in his ears?" After confirming that he still has fluid in his ears, she continues to say, "Well, I think he's a great candidate for tubes. When would you like to schedule his surgery?" So, five minutes later, surgery is scheduled and we're on our way. Quick and easy!


After grabbing a bite to eat in the hospital cafeteria, we headed up to the Hematology/Oncology clinic. We were supposed to just see a nurse for W to receive his first shot of Neupogen, but we were able to sneak in a visit with the doctor. She was very talkative with us and we discussed several issues, such as testing me and Adam for genetic confirmation, fighting insurance for coverage, submitting paperwork to the SCN Registry and the SDS Registry, and the pros/cons of an elective bone marrow transplant before cancerous cells are even found. After talking for a while, he finally received his first dose of Neupogen. We had to stay there for an hour to make sure he didn't develop a reaction to it. We waited, no reaction, and after 5 hours spent at Children's, we were finally able to head home! We had one tired puppy who fell asleep in the parking garage...